[Med-privacy] Re: Electronic Health Records Legislation Fails to Pass
Jeff Williams
jwkckid1@ix.netcom.com
Mon, 20 Nov 2006 22:17:44 -0800
Deborah and all,
Well thank god this bill was defeated in it's present form, as it
was horribly flawed. I am sure my mother will be very glad to
hear this news also, as I am very sure many of the elderly will.
I only wish some segments of the Judiciary would pay more
head to individuals medical privacy. And they know whom
they are that do not do so..
Deborah Peel, MD wrote:
> Patient Privacy Rights
>
> November 2006 Legislative Update
>
> Electronic Health Records Bill Fails to Pass
> Patient Privacy Gains National Attention
>
> Congratulations! Thanks to the involvement of our members and
> coalition partners, Americans' private medical records will not be
> exposed over electronic health networks.
>
> The 109th Congress, 2nd Session ended without passing controversial
> Health IT legislation to create electronic health records and expose
> Americans' most personal information to abuse by credit reporting
> agencies, insurance companies, drug companies and employers.
>
> Thank you to all the activists, partners and supporters who spoke up
> for restoring Americans' right to medical privacy, spread the word
> about medical privacy dangers and helped block this controversial
> bill.
>
> With your help, patient privacy is now part of the national debate on
> Health IT legislation, discussions about electronic health systems and
> the development of policies to protect privacy. Looking forward to
> 2007, we anticipate many new opportunities to restore and strengthen
> Americans' medical privacy:
>
> * Include basic privacy principles that allow patients to control who
> can see and use their medical records in any and all federal health IT
> bills
> * Promote consumer-controlled and owned health banks and medical data
> repositories that allow consumers to control who can see and use their
> medical records.
> * Include patient-oriented and consumer-oriented voices in the
> regional and state-level health IT governance boards developing health
> IT policy and providing oversight of health information exchanges.
> * Continue to raise awareness about the failure of HIPAA to provide
> the privacy protections Americans expect at regional, state and
> federal levels.
>
> It has been a remarkable Congressional session. We opened a national
> dialogue about the need for patient privacy, developed a broad-based
> non-partisan coalition working on patient privacy and mobilized a
> critical base of citizens fighting for their right to control who sees
> and uses their most sensitive information.
>
> We look forward to continuing to work with all our partners and
> allies. Together we can restore our privacy.
>
> Sincerely,
>
> Deborah Peel
> Chairman
> Patient Privacy Rights
>
> Tina Williamson
> President
> Patient Privacy Rights
>
> Patient Privacy Principles
>
> * Right to medical privacy (consent, opt-in and opt-out of databases)
>
> * Right to segment sensitive info
> * Audit trails of all disclosures
> * Breach notification
> * Meaningful penalties and enforcement
> * Health data disclosed for one purpose may not be used for any other
> purpose without informed consent
> * Disclosures of PHRs, EMRs, or any form of personal electronic
> health records may not be required as a condition of obtaining
> employment, insurance, credit, or admission to schools
>
> Take Action
>
> Donate Now
> Patient Privacy Rights is working to restore your privacy rights.
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>
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>
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>
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>
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>
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>
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>
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>
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Regards,
--
Jeffrey A. Williams
Spokesman for INEGroup LLA. - (Over 134k members/stakeholders strong!)
"Obedience of the law is the greatest freedom" -
Abraham Lincoln
"Credit should go with the performance of duty and not with what is
very often the accident of glory" - Theodore Roosevelt
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United States v. Carroll Towing (159 F.2d 169 [2d Cir. 1947]
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