[Med-privacy] UPI story to post? Groups urge patient control of records
DPeelMD@aol.com
DPeelMD@aol.com
Sat, 19 Nov 2005 16:02:59 EST
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Subject: FW: UPI story to post? Groups urge patient control of records
Date: Sat, 19 Nov 2005 15:01:59 -0600
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Thread-Topic: UPI story to post? Groups urge patient control of records
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From: "Dr. Deborah Peel" <dpeelmd@patientprivacyrights.org>
To: <dpeelmd@aol.com>
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________________________________
From: Dr. Deborah Peel=20
Sent: Saturday, November 19, 2005 2:56 PM
To: 'med-privacy@venice.essential.org'
Subject: UPI story to post? Groups urge patient control of records
United Press International
News. Analysis. Insight.
11/16/2005 3:23:00 PM -0500
Newstrack: The second of two inmates who escaped from an Iowa prison was
captured Friday morning in Missouri. A former spokesman for U.S. Rep.
Tom DeLay, R-Texas, was charged Friday with conspiring to defraud Indian
tribes of millions of dollars. A new biography attempts to revive the
reputation of Chicago Cubs catcher Johnny Kling, a star of the first
decade of the 20th century. President George W. Bush plans to use an
address to U.S. troops in Korea to criticize opponents of his Iraq War
policy. A lawsuit filed by a group of unions claims that landlords in
New Orleans are unfairly evicting tenants scattered by Hurricane
Katrina. A scientific study links a Nevada metals company to a cluster
of leukemia cases in the area. Special counsel Patrick Fitzgerald plans
to present evidence in the CIA leak case to a new grand jury, The
Washington Post reported Friday. Tropical Storm Gamma, the
record-shattering 24th named storm of the Atlantic hurricane season
formed Friday in the Caribbean. A black aviator who planned a
record-breaking pole-to-pole flight believes his plane was sabotaged
while it was parked at a Maryland airport. Russian officials say that
army commandos raided an al-Qaida headquarters in Chechnya, killing one
of the group's leaders.
Health Business
Groups urge patient control of records
By ALEX CUKAN=20
ALBANY, N.Y., Nov. 16 (UPI) -- In the wake of polls showing most
Americans have privacy worries as their personal health data goes
electronic, consumer groups want lawmakers to ensure that the ultimate
control over medical records remains in the hands of the patient.=20
Congress is considering a proposal to build a national Health
Information Network, but two patient groups -- the Electronic Privacy
Information Center in Washington and the Austin, Texas-based Patient
Privacy Rights Foundation -- told United Press International that the
measure is still weak on privacy safeguards.=20
"There needs to be a firewall between employers and the medical
information of its employee -- I've seen mental health records used
against people," Dr. Deborah C. Peel, founder of Patient Privacy Rights
Foundation, told UPI. "I've seen patients with sweaty palms, which many
would not necessarily call shameful or disturbing, but it can be to that
person, so we think the patient should decide what information should be
shared."=20
The groups say that the following protections should be included in the
nascent health information network:=20
-- The patient should determine who can see and use his or her medical
records.=20
-- The patient should not have his or her medical records seen or used
by an employer.=20
-- The patient should not be forced to give up privacy to get medical
treatment.=20
Peel and Marc Rotenberg, executive director of EPIC, are also looking to
Capitol Hill for help.=20
Rotenberg said the 21st Century Health Information Act, sponsored by
Rep. Patrick Kennedy, D-R.I., is the only bill currently under
consideration in Congress that allows people to opt out of being part of
a national health database.=20
Patients have the option of allowing only designated healthcare
providers to access their individually identifiable information
concerning diagnosis and treatment of sexually transmitted diseases,
addiction and mental illnesses.=20
"Our bill guarantees that individuals will be able to opt out of having
their health information in health information networks. (It) requires
that, for those who do choose to be in, they can restrict which
providers see certain kinds of highly sensitive information; and (also)
requires disclosures to Health and Human Services and affected consumers
in the event of unauthorized access or other security breaches," said
Kennedy, a key supporter of health IT legislation in Congress.=20
"We need to ensure that the confidentiality and security safeguards are
up to the challenges of an online, digital health environment. There are
people who set up privacy vs. IT as if they're in opposition -- they're
absolutely not. IT can be much more secure than paper, but we need to
make sure we're building the protections in from the start."=20
Health IT is the inevitable wave of the future, but reassuring a nervous
public is a cornerstone to its success, the lawmaker said.=20
"Health IT can do away with that infuriating clipboard, save us the
hassle and costs of unnecessary tests and procedures, and even save our
lives," Kennedy told United Press International.=20
"It can revolutionize healthcare, but only if Americans trust that their
most sensitive personal information will be secure. There should be one
simple principle embedded in any health IT legislation: Individuals
control who sees their health information," he said.=20
This year's National Consumer Health Privacy Survey, conducted by
Forrester Research for the California HealthCare Foundation, showed that
one out of three Americans polled had privacy concerns as the nation
moves to paperless medical records.=20
The survey also found that one in eight patients engages in behavior to
protect personal privacy, such as asking their doctor to not record a
health problem, going to another doctor to avoid telling their regular
doctor about a health condition and avoiding medical tests.=20
The survey also found that one in four polled was aware of recent
privacy breaches concerning credit-card information reported in the
media.=20
However, despite their concerns, consumers generally had a favorable
view of new health technology -- 59 percent were willing to share
personal health information when it could result in better medical
treatment.=20
Alex Cukan covers healthcare technology for UPI. E-mail:
healthbiz@upi.com
(c) Copyright 2005 United Press International, Inc. All Rights Reserved
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<HR tabIndex=3D-1>
<FONT face=3DTahoma size=3D2><B>From:</B> Dr. Deborah Peel <BR><B>Sent:</B>=20
Saturday, November 19, 2005 2:56 PM<BR><B>To:</B>=20
'med-privacy@venice.essential.org'<BR><B>Subject:</B> UPI story to post? Gro=
ups=20
urge patient control of records<BR></FONT><BR></DIV>
<DIV></DIV>
<DIV><FONT face=3DArial size=3D2>
<DIV><FONT face=3DArial size=3D2>
<DIV id=3Du-upi>United Press International<BR><SPAN>News. Analysis.=20
Insight.</SPAN></DIV>
<DIV id=3Du-w>
<DIV id=3Du-c>
<DIV id=3Du-c2>
<DIV id=3Du-h>
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<DIV id=3Du-meta>11/16/2005 3:23:00 PM -0500</DIV>
<DIV id=3Du-m>
<DIV id=3Du-newstrack>
<MARQUEE scrollDelay=3D250><SPAN class=3Du-h6>Newstrack:</SPAN> <SPAN>The se=
cond of=20
two inmates who escaped from an Iowa prison was captured Friday morning in=20
Missouri.</SPAN> <SPAN>A former spokesman for U.S. Rep. Tom DeLay, R-Texas,=20=
was=20
charged Friday with conspiring to defraud Indian tribes of millions of=20
dollars.</SPAN> <SPAN>A new biography attempts to revive the reputation of=20
Chicago Cubs catcher Johnny Kling, a star of the first decade of the 20th=20
century.</SPAN> <SPAN>President George W. Bush plans to use an address to U.=
S.=20
troops in Korea to criticize opponents of his Iraq War policy.</SPAN> <SPAN>=
A=20
lawsuit filed by a group of unions claims that landlords in New Orleans are=20
unfairly evicting tenants scattered by Hurricane Katrina.</SPAN> <SPAN>A=20
scientific study links a Nevada metals company to a cluster of leukemia case=
s in=20
the area.</SPAN> <SPAN>Special counsel Patrick Fitzgerald plans to present=20
evidence in the CIA leak case to a new grand jury, The Washington Post repor=
ted=20
Friday.</SPAN> <SPAN>Tropical Storm Gamma, the record-shattering 24th named=20
storm of the Atlantic hurricane season formed Friday in the Caribbean.</SPAN=
>=20
<SPAN>A black aviator who planned a record-breaking pole-to-pole flight beli=
eves=20
his plane was sabotaged while it was parked at a Maryland airport.</SPAN>=20
<SPAN>Russian officials say that army commandos raided an al-Qaida headquart=
ers=20
in Chechnya, killing one of the group's leaders.</SPAN></MARQUEE></DIV>
<DIV id=3Du-story>
<H2 class=3Du-under>Health Business</H2>
<H2 class=3Du-story-hdr>Groups urge patient control of records</H2>
<P>By ALEX CUKAN=20
<P>ALBANY, N.Y., Nov. 16 (UPI) -- In the wake of polls showing most American=
s=20
have privacy worries as their personal health data goes electronic, consumer=
=20
groups want lawmakers to ensure that the ultimate control over medical recor=
ds=20
remains in the hands of the patient. </P>
<P>Congress is considering a proposal to build a national Health Information=
=20
Network, but two patient groups -- the Electronic Privacy Information Center=
in=20
Washington and the Austin, Texas-based Patient Privacy Rights Foundation --=20=
told=20
United Press International that the measure is still weak on privacy safegua=
rds.=20
</P>
<P>"There needs to be a firewall between employers and the medical informati=
on=20
of its employee -- I've seen mental health records used against people," Dr.=
=20
Deborah C. Peel, founder of Patient Privacy Rights Foundation, told UPI. "I'=
ve=20
seen patients with sweaty palms, which many would not necessarily call shame=
ful=20
or disturbing, but it can be to that person, so we think the patient should=20
decide what information should be shared." </P>
<P>The groups say that the following protections should be included in the=20
nascent health information network: </P>
<P>-- The patient should determine who can see and use his or her medical=20
records. </P>
<P>-- The patient should not have his or her medical records seen or used by=
an=20
employer. </P>
<P>-- The patient should not be forced to give up privacy to get medical=20
treatment. </P>
<P>Peel and Marc Rotenberg, executive director of EPIC, are also looking to=20
Capitol Hill for help. </P>
<P>Rotenberg said the 21st Century Health Information Act, sponsored by Rep.=
=20
Patrick Kennedy, D-R.I., is the only bill currently under consideration in=20
Congress that allows people to opt out of being part of a national health=20
database. </P>
<P>Patients have the option of allowing only designated healthcare providers=
to=20
access their individually identifiable information concerning diagnosis and=20
treatment of sexually transmitted diseases, addiction and mental illnesses.=20=
</P>
<P>"Our bill guarantees that individuals will be able to opt out of having t=
heir=20
health information in health information networks. (It) requires that, for t=
hose=20
who do choose to be in, they can restrict which providers see certain kinds=20=
of=20
highly sensitive information; and (also) requires disclosures to Health and=20
Human Services and affected consumers in the event of unauthorized access or=
=20
other security breaches," said Kennedy, a key supporter of health IT legisla=
tion=20
in Congress. </P>
<P>"We need to ensure that the confidentiality and security safeguards are u=
p to=20
the challenges of an online, digital health environment. There are people wh=
o=20
set up privacy vs. IT as if they're in opposition -- they're absolutely not.=
IT=20
can be much more secure than paper, but we need to make sure we're building=20=
the=20
protections in from the start." </P>
<P>Health IT is the inevitable wave of the future, but reassuring a nervous=20
public is a cornerstone to its success, the lawmaker said. </P>
<P>"Health IT can do away with that infuriating clipboard, save us the hassl=
e=20
and costs of unnecessary tests and procedures, and even save our lives," Ken=
nedy=20
told United Press International. </P>
<P>"It can revolutionize healthcare, but only if Americans trust that their=20=
most=20
sensitive personal information will be secure. There should be one simple=20
principle embedded in any health IT legislation: Individuals control who see=
s=20
their health information," he said. </P>
<P>This year's National Consumer Health Privacy Survey, conducted by Forrest=
er=20
Research for the California HealthCare Foundation, showed that one out of th=
ree=20
Americans polled had privacy concerns as the nation moves to paperless medic=
al=20
records. </P>
<P>The survey also found that one in eight patients engages in behavior to=20
protect personal privacy, such as asking their doctor to not record a health=
=20
problem, going to another doctor to avoid telling their regular doctor about=
a=20
health condition and avoiding medical tests. </P>
<P>The survey also found that one in four polled was aware of recent privacy=
=20
breaches concerning credit-card information reported in the media. </P>
<P>However, despite their concerns, consumers generally had a favorable view=
of=20
new health technology -- 59 percent were willing to share personal health=20
information when it could result in better medical treatment. </P>
<P></P>
<P>Alex Cukan covers healthcare technology for UPI. E-mail:=20
healthbiz@upi.com<BR><BR></P>
<P class=3Du-copyright>© Copyright 2005 United Press International, Inc=
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