[Ip-health] Front Page Story: The High Cost of Living on Biologics

[Year of Affordable Healthcare]

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Front Page Story: The high cost of living [on Biologics]

The Sunday edition of the Port Huron Times-Herald ran a great article
Sunday about Year of Affordable Healthcare advocate
[http://www.fivevstwelve.com/rob.html] Rob Day's struggle to afford his
biologic prescription in the absence of generic alternatives. You can read
the entire article
[http://www.thetimesherald.com/article/20091101/NEWS01/911010312] here.

Rob was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH), a rare
blood disorder, more than 20 years ago. After years of struggling to treat
his condition, today Rob uses Soliris to help him live with PNH.

Rob is happily married with two children, but the approaching cap on his
insurance threatens both his health and his family's financial future. A
competitive generic pathway that could yield more affordable versions of
his biologic medicine, and could at least give him some peace of mind and
help to ease his financial burdens.

Rob Day waited two decades for a cure to his rare blood condition. For
the 41-year-old Lexington man, the day never came.

"I went 20 years waiting for a miracle cure to come," he said. "Well, I
got the next best thing."

That next best thing is Soliris, a biomedic drug that allows Day to
function on a day-to-day basis. It is a drug that costs more than $32,000 a
month, a cost covered by his insurance plan.

The bad news is that, though he's been on the drug just two years, he has
only a few years of eligibility left before he reaches his insurance plan's
$2 million cap on benefits.

For more information about Year of Affordable Healthcare, please visit
our Web site at [http://www.yearofaffordablehealth.com/]
www.yearofaffordablehealth.com.


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