[Date Prev][Date Next][Thread Prev][Thread Next][Date Index][Thread Index]

May 10 Workshop / Medical Privacy - Revised Program

  this is the most recent program for the May 10, 1996 Workshop on Medical 
  Records Privacy.  jamie
                   Workshop on Medical Records Privacy
                           (revised program)
                            CO-SPONSORED BY:
                        American Civil Liberties Union
                       Consumer Project on Technology
               Computer Professionals for Social Responsibility
                        Coalition for Patient Rights 
                Electronic Privacy Information Center (EPIC)
                           JRI Health Law Center 
                      Friday, May 10, 9 a.m. to 4 p.m.
                        The Carnegie Institution
                    1530 P Street, NW, Washington, DC
  The U.S. Senate is considering legislation that would pre-empt 
  most state laws on health care privacy, and create a new federal 
  system regulating access to medical records.  The proposed 
  legislation, S. 1360 is controversial. 
  Many privacy groups say that S. 1360 provides far too much access 
  to personally identified medical records by insurance companies, 
  employers, schools, medical researchers, public health and law 
  enforcement officials.  These groups say that technology has 
  outpaced policy, that the legislation fails to address the 
  radical changes in the way records are stored and disseminated, 
  and that the proposed legislation does more to promote access to 
  records than to assure patients that their medical records will 
  be private.
  Supporters of S. 1360 claim that the legislation strikes a 
  balance between the needs of industry and government and the 
  patient's rights to privacy, and that extensive third party 
  access to personal medical records is both inevitable and 
  socially desirable.
  The May 10 workshop features experts from a number of fields, and 
  tackles some of the most thorny controversies.
  9:00 am	  Who really controls access to medical records?  What is
            coercive consent?  What proposals would enhance patient
            control over access to records?  
  Moderator, John Roberts, MD.  North American Editor, British
       Medical Journal.
  Lawrence Gostin, Professor of Law at Georgetown University Law 
       Center and Professor of Public Health at Johns Hopkins
       University School of Hygiene and Public Health.  Editor of
       JAMA's section on Health Law and Ethics, and former Chair of
       President Clinton's Health Care Task Force group on Privacy
       and the Health Care Infrastructure.
  Mark Rothstein, Hugh Roy and Lille Cranz Cullen Distinguished 
       Professor of Law and Director of the Health Law and Policy 
       Institute at the University of Houston.  Author of The 
       Genome and the Future of Health Care,  and consultant to 
       several federal agencies.
  Respondent, Denise Nagel, MD.  Psychiatrist in private practice, 
       President of the Coalition for Patient Rights of New 
       England, Chair of Medical Privacy Confidentially Project, 
       Coalition for Patient Rights, Chair of the Medical Privacy 
  10:30 am  Non-consensual Access to Medical Records by Civil 
            Litigants, Law Enforcement and Other Government 
            Oversight Officials
  Moderator, David Banisar.  Policy Analyst, Electronic Privacy 
       Information Center (EPIC), Deputy Director of Privacy 
       International, and a member of Computer Professionals for 
       Social Responsibility (CPSR).
  Don Haines, Attorney,  American Civil Liberties Union.
  Andrew Grosso, formerly the head of the first joint federal and 
       state health care fraud task force.  Vice Chair of the ABA 
       Criminal Justice Section's Committee on Science and 
       Technology, member of Association for Computing's Committee 
       on U.S. Pubic Policy (USACM). 
  A.G. Breitensten, Director of the JRI Health Law Institute (HLI) 
       in Massachusetts. HLI represents over 20 AIDS Organizations 
       in the Boston area who are suing the Inspector General of 
       Health and Human Services regarding the Inspector General's 
       claimed right to access and disclose the identities of 
       people receiving AIDS services from federally funded 
  Noon to 2 p.m.	Lunch.  
  Lunch will feature discussions of current policy initiatives.
  Representative Jim McDermott (invited).  Representative Jim 
       McDermott (D-WA), who is trained as a psychiatrist, is an 
       important Congressional supporter of efforts to enhance 
       privacy of medical records and to protect the public from 
       discrimination based upon genetic information.  He will be 
       joined by Martha Soto from Representative McDermott's 
  Wendy McGoodwin, Executive Director, Council for Responsible 
       Genetics, will discuss efforts in Congress to address 
       problems of genetic discrimination.
  Anthony Kraus and Mimi Azrael will discuss the current 
       controversies over the Maryland Medical Claims Data Base, 
       considered to be the first and most comprehensive 
       centralized, encounter-level database of its kind in the 
       U.S.  Mr. Kraus is a principal with the firm of Miles & 
       Stockbridge, a litigator of invasion of privacy suits, and 
       is active in efforts to preserve medical privacy.   Mimi 
       Azrael is an attorney with the firm Azrael, Gann and Franz, 
       and a specialist in civil rights and consumer protection.
  2 p.m. - 4 p.m.	Management of Medical Records.  What types of 
                  security are desirable and feasible in 
                  computerized health care information systems?
  Moderator, James Love.  Director of the Center for Study of
       Responsive Law's Consumer Project on Technology.
  Professor Ross Anderson.  Faculty member at Cambridge University 
       Computer Laboratory and Security Adviser to the British 
       Medical Association.  Professor Anderson is a well known 
       specialist in cryptography and computer security who has 
       developed a security policy model for medical records. 
  Professor James Fackler.  Professor of Anesthesia and Pediatrics 
       at Harvard Medical School, Associate Director of Children's  
       Hospital Informatics Program.  Professor Fackler's research 
       includes explorations of the use of the world-wide-web 
       technologies for medical record integration, and systems and 
       policies for protecting patient privacy.
  Respondent.  Kristin Welsh (invited).  Ms. Welsh is a staff 
       person for the Committee on Labor and Human Resources, who
       is on Medical Records Privacy.
  Version 2.0
  Registration isn't required, but it is appreciated (it helps us 
  plan).  To register, please send a note to:
  Manon Anne Ress
  Consumer Project on Technology
  P.O. Box 19367, Washington, DC 20036
  Voice: 202/387-8030; Fax 202/234-5176
  Internet:  mress@essential.org
  James Love / love@tap.org / P.O. Box 19367, Washington, DC 20036
  Voice: 202/387-8030; Fax 202/234-5176
  Center for Study of Responsive Law
     Consumer Project on Technology; http://www.essential.org/cpt
     Taxpayer Assets Project; http://www.tap.org