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I've been watching the debate for some time now, and would like to suggest
that the strong feelings exhibited are indicative of a marketing opportunity.
We've all seen how special interest groups have promoted "Anonymous Testing"
for venereal diseases, and certain other conditions. These people who
participated in these tests wanted to avoid being stigmatized by their
medical conditions. The concept here is no different for "healthy" people who
want to protect their privacy.
A recent article I read suggested that the average american has in his
make-up at least half a dozen mutant genes. This would mean by some
interpretations that all citizens could potentially have "pre-existing
tendencies" for genetically related health problems, potentially
disqualifying them from coverage.
If the medical community responded to provide health in a totally anonymous
model, there could be a market response. Who among us would choose to have
their medical histories on an EQUIFAX database, if we had another option. The
very existance of such a movement would do much more to spur the legislative
process towards privacy than anything thus far.
To this end, perhaps it would be best to lobby the medical associations to
have them respect their oaths "Primum non nocere" (sic) First, do no harm. It
now seems that sharing your health data with others could affect you
economically, leading eventually to serious health risks.
If I were a US doctor, I would perhaps explore the market potential of
franchising a premium quality clinic system, where the absolute privacy of
data is a basic tenet.
After all, shouldn't otherwise healthy citizens have the same rights and
protections as do the sexually promiscuous? Or does s1360 also remove the
operating rights of the all current anonymous testing centers?
Disclaimer: My opinions are my own, and do not necessarily reflect those of my
employer. The contents of this post are personal and do not represent either any
official, or unofficial communications of my employer. AIB