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Re: CPT Comments on S. 1360 - November 14, 1995 (fwd)
This isn't what's at issue here. I've yet to hear anyone involved in this
debate suggest that medical researchers should not have access to
anonymous aggregate medical information. What's at issue is personally
identifiable information - patient records with names, SSNs or other
identifiers attached.
James Love typed:
>
> A comment from the research community. jamie
>
>
> ---------- Forwarded message ----------
> Date: Mon, 20 Nov 1995 23:05:10 -0500 (EST)
> From: Michael A. Rogawski <neuro@helix.nih.gov>
> To: James Love <love@essential.org>
> Subject: Re: CPT Comments on S. 1360 - November 14, 1995 (fwd)
>
>
>
> I dream of a time when information on every patient treated in the United
> States is available for research purposes.
>
> Obviously, patient confidentiality must be protected. But, we would all
> be better off if we could use the total patient experience to determine
> which therapies work and which ones don't.
>
>
> ----------------------------------------------------------------------------
> N A T I O N A L I N S T I T U T E S O F H E A L T H
> National Institute of Neurological Disorders and Stroke
>
> Michael A. Rogawski, M.D., Ph.D. rogawski@nih.gov
> Building 10, Room 5C-205 301-496-8013
> Bethesda, MD 20892-1408, U.S.A. FAX 301-402-6788
> ----------------------------------------------------------------------------
>
>
>
--
<HTML><A HREF="http://www.eff.org/~mech/"> Stanton McCandlish
</A><HR><A HREF="mailto:mech@eff.org"> mech@eff.org
</A><P><A HREF="http://www.eff.org/"> Electronic Frontier Foundation
</A><P><A HREF="http://www.eff.org/A/"> Online Activist </A></HTML>